Patient-Reported Health in Young People With Congenital Heart Disease Transitioning to Adulthood.

J Adolesc Health. 2015 Dec;57(6):658-65. doi: 10.1016/j.jadohealth.2015.07.021. Epub 2015 Oct 9.

Patient-Reported Health in Young People With Congenital Heart Disease Transitioning to Adulthood.

Bratt EL1Luyckx K2Goossens E3Budts W4Moons P5.

Comment by Susan Fernandes


Bratt and colleagues performed a prospective longitudinal study examining patient-reported health status and quality of life in 429 adolescents (14-19 years of age) with congenital heart disease (CHD) and compared these results to controls.  Measurements were completed at baseline, 9 months, 18 months and 27 months. Overall, self-rated health was relatively good (baseline mean 81.8±13.5 on scale of 0 to 100) and decreased slightly over time (78.9±11.8 at 4th measurement).  Patients with more complex CHD had lower scores of self-rated health and quality of life compared to controls, but those with mild and moderate lesions actually reported higher scores than controls.  Based on the results of this study, the authors noted specific areas deserving attention that could improve health status for this population, including “symptoms, cognitive functioning and communication problems.”