Effectiveness of structured education on knowledge and health behaviors in patients with congenital heartdisease

J Pediatr. 2015 Jun;166(6):1370-1376.e1. doi: 10.1016/j.jpeds.2015.02.041. Epub 2015 Apr 1.

Effectiveness of structured education on knowledge and health behaviors in patients with congenital heartdisease.

Goossens E1Fieuws S2Van Deyk K3Luyckx K4Gewillig M5Budts W3Moons P6.

Comment: In preparation for transition from pediatric to adult congenital heart disease care, patients are expected to obtain the necessary skills for self care management.  Many centers utilize one educational session before, during or after transfer to provide this type of education.   Given this, Goosens and colleagues from Belgium set to determine if a single education session would have any impact on a patient’s knowledge of their congenital heart disease diagnosis, treatment plan and follow up, cardiovascular risk factors, cardiac symptoms, endocarditis, exercise and reproductive health.  In more than 200 adolescents (mean age 16±1.1 years), the baseline knowledge was noted as poor.  The single educational session did improve overall knowledge scores, but did not appear to decrease high-risk health behaviors.  Based on these findings, the authors suggest that longer-term studies are required to determine if repetitive educational sessions could further improvement knowledge and possibly decrease high risk behaviors.