Advocacy & Support

Advocacy and support groups exist on a regional, national, and international level and can be an excellent resource for individuals with congenital heart disease or related conditions as well as their loved ones. The following is a directory of groups, some of which exist only as mailing lists. Please note that inclusion in this list does not imply any endorsement by ISACCD. If you know of a group that is not listed, please contact us and we will consider it for inclusion.